When I first started this blog, I thought the number of people in the US who were like me, with a chronic, undiagnosed illness that was not CFS / ME (Chronic Fatigue Syndrome / Myalgic Encephalomyelitis), was in the tens of thousands. Then I found a group of CFS/MErs online who didn’t care if you have an official diagnosis or not, and after talking to them for a few months I upped my estimate tenfold. Then I found a Facebook group of people like me who had found success with mold avoidance, and eventually increased my estimate to the millions.
You are not weird or doing anything wrong. Except maybe expecting the American medical establishment to be able to help you. Or to even want to.
Here are the posts I’ve written on the subject.